Reporting of National Cancer Registry statistics in Europe: a scoping review

Background

Population-based cancer registries (PBCRs) play an important role in national cancer control programs by providing data for cancer statistics. The European Network of Cancer Registries (ENCR) aims to promote the impact and use of European PBCRs and umbrella organizations (UOs). This study maps the reporting practices of European national PBCRs (NPBCRs) and UOs regarding the key statistical indicators: incidence, prevalence, and survival. Patients and methods: The ENCR Members Contact List and Google.com were used to identify websites of all NPBCRs and UOs, which were screened for sources of evidence (SoEs). Using a predefined protocol, the SoEs were assessed for the reporting of incidence, prevalence, and survival, as well as the timeliness of reporting. A scoring rubric was used to assess data accessibility.