Translating scores into meaning: a co-produced forum for patient-reported outcome measure interpretation in pediatric congenital heart disease

Background

Patient and public involvement (PPI) and co-production are intended to increase the relevance and uptake of health research, yet structured ways of jointly interpreting patient-reported outcome measure (PROM) data in real time remain limited. We developed and tested a PROM-anchored participatory forum within a longitudinal pediatric congenital heart disease (CHD) study.