Research involvement and engagement
Co-designing engagement principles for involving children and young people in palliative care research in low- and middle-income settings
By Namisango E, Fraser LK, Nkhoma K and 13 others.
Abstract
Background
Engaging children in research processes is recognised as best practice, as it ensures studies are relevant and responsive to their needs. Limited evidence exists on effective approaches for engaging children with serious illnesses, particularly in palliative care and in resource-limited settings. This study aimed to work with children and young people with serious physical illness to co-design processes and practices for meaningful engagement and involvement in palliative care research within resource-limited settings.




