Abstract
This medical humanities research prospectus examines how lived experience documented in The Silence Between Two Heartbeats can generate research questions rather than serve as evidence of medical fact. Using “Six Months Without a Night” as an index case, it examines caregiver uncertainty after NICU discharge when observing movements that may or may not represent seizure activity. The primary research question considers whether safe, practical, non-invasive and clinically validated approaches could support capturing and interpreting abnormal electrographic brain activity at home for high-risk infants. The paper also identifies research questions concerning neonatal care, caregiver observation, family-centered care and post-discharge support. It does not provide medical advice, diagnosis, or evaluation of clinical care.
Keywords
- Neonatal and fetal brain pathology
- Lived experience
- Silence
- Prospectus
- Medical research
- Medical literature
- Primary care
- Open access
Source
This is a preprint: it has not been peer reviewed yet, and its findings may change.
Published in Zenodo (CERN European Organization for Nuclear Research). The abstract is shown as published and remains the work of its authors; read the full article at the source.
Prognia lists this article for reference and education. It is not medical advice. Always read the original and follow current guidelines and local protocols before acting on it.
