Boletin de la Asociacion Medica de Puerto Rico
Joubert syndrome. Respiratory failure requiring home mechanical ventilation
Abstract
A case of Joubert's Syndrome with respiratory insufficiency requiring mechanical ventilatory support is presented. The case illustrates the complex clinical, ethical and technical aspects in the management of patients with this syndrome and the feasibility of extending mechanical ventilatory support to the home setting. A caring, knowledgeable care team and a loving supportive family are required to properly continue treatment in the home in cases of this rare syndrome.
Source and rights
Published by Boletin de la Asociacion Medica de Puerto Rico, 1991. The guideline itself is at the source linked here.
Prognia summarises this guideline for reference and education. It is not medical advice. Always check the official guideline and current local protocols before acting on it.
At a glance
- Published
- 1991
- Applies to
- 🇵🇷 Puerto Rico
- Scope
- National
- Journal
- Boletin de la Asociacion Medica de Puerto Rico
- PubMed
- 1789891
- Added to Prognia
- 16 July 2026
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