Journal of Karnali Academy of Health Sciences
Miles before medicine: when illness, poverty, and geography collide in Jumla, Nepal
By Pratikshya Sharma, Noorjahan Khatun and Siddhartha Poudel.
Abstract
Chronic illnesses do not exist alone; they are rather profoundly shaped by social, economic, and geographic realities. This viewpoint presents the lived experience of a young man from Jumla, whose diagnosis of ankylosing spondylitis (AS) was compounded by poverty, caste-based disadvantage, geographic isolation, and subsequent complications, including tuberculosis and drug-induced hepatotoxicity. This article highlights how structural and societal inequities transform a manageable chronic condition into a disaster and how a chronic illness doesn’t just affect the person diagnosed but spills into the lives of their family. Reflecting on the social determinants of health and healthcare access in low-resource settings, this viewpoint calls for stronger health system support and social protection mechanisms, especially for patients with chronic diseases and subordinate people in remote regions of Nepal.



