Lived experiences of Informal Caregivers Providing Post-Stroke Care in Rural Ghana: A Qualitative Study

Abstract Background Stroke is a major cause of disability, leaving most survivors functionally dependent. Optimal recovery requires expert care from multidisciplinary health professionals. However, limited access to such services in resource-constrained countries places the long-term burden of caring for stroke survivors on family members. However, little is known about the context-specific realities faced by these informal caregivers in Ghana. This study aimed to explore the lived experiences of informal caregivers of stroke survivors in the Upper East Region of Ghana. Methods This was a descriptive phenomenological study, involving 12 purposively sampled informal caregivers who accompanied stroke survivors to the physiotherapy unit of the Upper East Regional Hospital. Data was obtained through individual face-to-face interviews, transcribed verbatim, and analyzed using reflexive thematic analysis. Results We found that informal stroke caregivers struggle with an overwhelming workload amidst limited opportunities for rest and sleep, culminating in sheer physical exhaustion and chronic fatigue. Emotionally, caregivers experienced profound sadness and worry, fear and anxiety, and sometimes anger and frustration. Conclusion Our findings suggest that the burden of stroke transcends the pain and anguish endured by survivors but adversely impacts the physical and emotional wellbeing of informal caregivers. This calls for tailored policies and interventions that address the unique challenges faced by family members caring for stroke survivors in Ghana.