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BMC Public Health
By Lawrence A. Adebusoye, Eniola Cadmus, Abimbola Adeniran Atanda and 7 others.
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Care for People Living with Dementia (PwD) is predominantly provided through informal systems, which are often demanding and place a significant burden on caregivers. To enhance the quality of care for PwDs, it is crucial to provide training and support for informal caregivers. This study aims to fill a health equity gap by providing a culturally and linguistically adaptable and validated WHO iSupport training manual for Yoruba-speaking informal caregivers in Nigeria. This study documents the process of the cultural adaptation of the World Health Organisation iSupport training manual for informal carers of PwD, emphasizing the participatory strategies used to develop a culturally tailored Yoruba version of the manual. The study took place at University College Hospital, Ibadan, in the Yoruba-speaking part of southwest Nigeria. It was done in four phases: content translation, linguistic and cultural revision by the community advisory board, validation through Key Informant Interviews (KIIs) with formal caregivers, and refinement and final adaptation by experts in the care of PwDs. The manual is organized into five modules covering the understanding of dementia, managing behavioural symptoms, communication, daily care, caregiver self-care, and accessing dementia-related support services. The reports of each phase of the cultural adaptation process show valuable insights into the development of the Yoruba version of iSupport. Participants agreed that the iSupport manual is comprehensible and easy to understand, with some reporting the need to adapt most scientific terms or phrases and numbers to Yoruba. Some original names were retained as ‘loanwords’ for those with Yoruba tones. The KIIs illustrate the challenges faced in caring for PwDs. The cultural adaptation of the Yoruba version of the iSupport manual has shown the need for culturally sensitive, community-participatory and comprehensive interventions that address the multifaceted challenges of dementia caregiving in diverse settings. This attempt provides a strong foundation for further research and implementation efforts in other low- and middle-income countries.
Published in BMC Public Health. The abstract is shown as published and remains the work of its authors; read the full article at the source.
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